May 9, 2014
Batten Patient Inspires Utah Legislation Named in Her Honor
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March 10, 2014
Rare Disease Day 2014 Candlelight Vigil with Taylor’s Tale
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February 23, 2013
First Annual “Dollar Denim Days” Campaign for Batten Disease on World Rare Disease Day
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February 1, 2013
“Rock The Reel” Rare Disease Events Energize Hope
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