April 14, 2017
RARECast: Rare Disease Advocates Push for Incentives to Drugmakers Pulled from Cures Act
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April 4, 2017
Town Hall Launch Gives Platform for Patient Advocacy – Will You Inbox Your…
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April 3, 2017
Ask Congress to Pass a Real Budget for Medical Research
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January 15, 2017
Rare Disease Report: Making Progress in Rare Diseases
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November 25, 2016
Save the Date for Rare Disease Week on Capitol Hill: February 27th –…
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November 18, 2016
EveryLife Foundation: Webinar on Rare Disease Week on Capitol Hill to be Held…
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August 29, 2015
Jill Ziegler Talks How To Go From Enthusiast to Advocate
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August 27, 2015
“Rare Disease is Bipartisan”
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July 3, 2015
RARECast: How the 21st Century Cures Act Puts Patients at the Table
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July 16, 2014
The Immune Deficiency Foundation Requests Support for New Legislation on Limiting Patient Cost&...
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August 11, 2013
Threatening Orphans, An Eye on Current Legislation
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June 28, 2012
FDA User Fee Bill Is Landmark Legislation – Major Wins for the Rare…
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