June 14, 2017
Video: How Children’s Hospital of Philadelphia is Helping Leukodystrophy Patients
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August 13, 2016
Parenting a Child with a Terminal Illness: The Cupcake Revolution
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March 1, 2016
Rare Disease Patient’s Parents Sew Positioning Pillows for Sick Kids at Children’s Hospitals
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May 19, 2014
Six Year Old Lilly Wants You To Help Save Her Little Cousin’s Life!
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May 8, 2014
Loops for Lucas: Battling Leukodystrophy
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September 30, 2013
Young Girl Battles Rare form of Leukodystrophy, Alexander Disease
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January 22, 2013
Aidan’s Journey with ALD Leads his Parents to Petition for Advancements in Newborn Screening
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October 12, 2012
Anayas Angels: One Moms’ Discovery of Life and Loss with Krabbe Disease
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August 24, 2012
An abbreviated future with Leukodystrophy: Understanding the blessings of our special ones
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August 14, 2012
A Boy with a Rare Disease Called Krabbe Creates a Legacy – Meet Judson Levasheff
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February 7, 2012
Marshall and Me – My Hero Brother Is Fighting Krabbe Leukodystrophy
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