June 14, 2017
Video: How Children’s Hospital of Philadelphia is Helping Leukodystrophy Patients
March 1, 2016
Rare Disease Patient’s Parents Sew Positioning Pillows for Sick Kids at Children’s...
May 19, 2014
Six Year Old Lilly Wants You To Help Save Her Little Cousin’s Life!
May 8, 2014
Loops for Lucas: Battling Leukodystrophy
September 30, 2013
Young Girl Battles Rare form of Leukodystrophy, Alexander Disease
January 22, 2013
Aidan’s Journey with ALD Leads his Parents to Petition for Advancements in Newborn&hellip...
October 12, 2012
Anayas Angels: One Moms’ Discovery of Life and Loss with Krabbe Disease
August 24, 2012
An abbreviated future with Leukodystrophy: Understanding the blessings of our special ones
August 14, 2012
A Boy with a Rare Disease Called Krabbe Creates a Legacy – Meet…
February 7, 2012
Marshall and Me – My Hero Brother Is Fighting Krabbe Leukodystrophy