June 11, 2015
The Times of India (Bangalore): Court Orders “Treat Rare Disease Patients for Free”
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April 13, 2015
RARECast: New Diagnostic Offers Fast Answers For Group of Rare Diseases
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June 5, 2013
BDSRA Family Conference, “Notes of Hope”
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May 27, 2013
Batten Disease Awareness Weekend
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May 18, 2013
Nimbus Discovery, Shire to Co-Develop Oral Rare Disease Drugs
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March 25, 2013
Genzyme Introduces “Chart Your Own Course” Scholarship Contest for the LSD Community
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August 6, 2012
Darling Dakota’s Life Taken By Rare Lysosomal Storage Disorder Called Wolman’s Disease
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July 16, 2012
Luis has Mucolipidosis III – Learn how ISMRD.org Supports People Living with Lysosomal Storage Diseases
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