March 13, 2012
MarbleRoad: A Storybook Success
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February 13, 2012
RARE DISEASE DAY EVENTS 2012
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January 3, 2012
Submit Your Story to the Rare Children’s Storybook Project by January 13
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October 17, 2011
50/50 and Neurofibrosarcoma
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October 17, 2011
The CLASS Act and Caregiver Village
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September 6, 2011
The Yellow Bird Project for #RareDisease / @MarbleRoad @YBP by @SarahGrothjan
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August 18, 2011
Genzyme Announces Winners of Patient Advocacy Leadership Award Grants
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August 1, 2011
NeuroDetour: A Conversation with Melanie Miller
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July 4, 2011
The Flammable Heart Exhibition
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February 27, 2011
Rare Disease Day 2011: Research, Action and Impact
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February 10, 2011
Statement from Howard Liebers on Proposed Budget Cuts For Rare Diseases
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December 16, 2010
Anti-ACA Litigation, Extenders Act and Rare Disease Day 2011
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