August 13, 2013
Aleena Sadownyk, Alberta Girl With Maroteaux-Lamy Syndrome, Awaits Word On Treatment Funding
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December 20, 2012
A Mother of a Young Boy with MPS VI Desperately Searches for a Solution
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April 20, 2011
San Francisco Giants to host Rare Disease Fundraiser for MPS IV – with YouTube sensation Keenan Cahill!
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