June 20, 2017
Young Patient Collects Can Tabs to Raise Funds for Ronald McDonald House
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July 27, 2015
“A Cold That Just Wouldn’t Go Away” 15-Year-Old Lives With Dyskeratosis Congenita
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March 16, 2015
Autoimmune Atrophic Gastritis: A Community In Search of Answers
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December 25, 2013
Kristen Johnston Has Rare Autoimmune Disorder, Opens Up On Facebook
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August 5, 2012
The Importance of Patient Initiated Research and Virtual BioTechs
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July 29, 2012
Noah Faces Fight For Life Against Recurrent Infections Due To Interleukin-12 Deficiency
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April 12, 2012
Adenomyosis: Rare at a Young Age
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February 24, 2012
A Family’s Fight Against Carbamoyl Phosphate Synthetase Disease
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February 24, 2012
The Power of Rare Disease Patients – From Passing Laws To Starting BioTechs
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June 8, 2011
PARENT COMMENTS ON REUTERS REPORT – U.S. cancer drugs shortage has doctors scrambling
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