Tag: medicaid

A total of 7 posts are filed under medicaid
Action Alert: Sign to Help Patients Access Lifesaving Treatments
Did you know that many rare disease patients enrolled in Medicaid cannot access lifesaving and life improving Food and Drug Administration… Continue Reading
Action Alert: Patient Support Needed for Letter to Centers for Medicare and Medicaid Services (CMS)
FOUNDATION LEADERS: Please consider adding your organization to a letter we will be sending to the Centers for Medicare and Medicaid… Continue Reading
To the Center of Medicare & Medicaid Services
CMS’ recent Medicare Part D proposed rule will reduce consumer choice and impose higher costs on beneficiaries and taxpayers.  Medicare… Continue Reading
New Novartis Resource: Affordable Care Act Map
Novartis has launched a series of new resources to help patients navigate the wily world of rare policy and advocacy. First in the list of… Continue Reading
Purvis Grandparents Hold Benefit to Help Grandson withTay-Sachs
PURVIS, MS (WDAM)- Back in September 2012, Purvis residents Jeffrey and Melinda Jones hosted a car show benefit for their grandson Jacob… Continue Reading
The Flammable Heart Exhibition
The Charles August Long Undiagnosed Diseases Act of 2011; the battle to save community health center funding and keep Medicaid intact; The… Continue Reading
Clinical Trials for Rare Disease Patients – Legislation needs your support!
We wanted you to be aware of pending Federal legislation that may be significant for you and for our rare disease community. In June,… Continue Reading

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