June 14, 2016
‘Spicerfest’ Shines Spotlight On Rare Disease
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March 12, 2016
Pompe Diagnosis Brings Relief After One Woman’s Long Search
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January 28, 2016
Harrison’s Fund Raises £236,000 Towards Financing Research of Muscular Dystrophy
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August 10, 2015
“I’m Determined To Make Sure He Sees a Cure,” Says Father of Boy…
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January 20, 2015
“Will I Grow Out of It?” A Patient Confronts The Reality of Muscular…
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March 18, 2014
In Memory of Haley: A Service Dog for Patient with Hypokalemic Periodic Paralysis
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March 7, 2014
Help us Reauthorize the MD-CARE Act
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February 3, 2014
UK Rare Disease Patients Need Integrated Care from Specialists and Local Teams
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December 27, 2013
New Bicycling Team Emerges: Rare Disease Cycling
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November 15, 2012
Acute Intermittent Porphyria: Joy Lives With Avoidance and Caution
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October 4, 2012
2nd Annual Casino Night to Benefit the Samantha J. Brazzo Foundation
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July 5, 2011
‘THE HILL’ Reports: Help children with rare diseases get the new medicines they&hel...
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