January 25, 2016
Vtesse Granted Breakthrough Therapy Designation for Neimann-Pick
January 30, 2012
Blog Hop for Rare Disease Day – Please Read, Share and Raise Awareness!
July 25, 2011
Washington Post Supplement sheds light and insights into the world of rare disease
April 25, 2011
PARENT DRIVEN RESEARCH – Innovations from the trenches!
January 4, 2011
Kids Helping Kids – Denim Ribbon’s being made to support World Rare Disease…
September 24, 2010
Children’s Hospital Oakland Receives FDA Clearance to Begin World’s First Cyclodextrin Admi...