January 25, 2016
Vtesse Granted Breakthrough Therapy Designation for Neimann-Pick
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January 30, 2012
Blog Hop for Rare Disease Day – Please Read, Share and Raise Awareness!
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July 25, 2011
Washington Post Supplement sheds light and insights into the world of rare disease
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April 25, 2011
PARENT DRIVEN RESEARCH – Innovations from the trenches!
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January 4, 2011
Kids Helping Kids – Denim Ribbon’s being made to support World Rare Disease…
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September 24, 2010
Children’s Hospital Oakland Receives FDA Clearance to Begin World’s First Cyclodextrin Admi...
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