Tag: Neurodegenerative Disorders

A total of 4 posts are filed under Neurodegenerative Disorders
The Spousal Caregiver: More on Crying
In my last blog, I wrote that a good cry helped to dissipate the mental overload I was suffering. As a caregiver, I have learned the… Continue Reading
6-Year-Old Louisiana Boy With a Rare Neurodegenerative Disease Searches For Hope
Just 30 seconds of your time can change someone’s life. All it requires is for you to click a button and this will make little Alexander… Continue Reading
Hope Bracelet Symbolizes an Intertwined Network of Support During a Long Journey, Seeking a Diagnosis for Alex
After more than two years of extensive testing, Alex is still undiagnosed for a progressive neurodegenerative disease that slowly over the… Continue Reading
Paola’s Life with Multiple System Atrophy (MSA)
Last week I went back to high school. My friend and co-worker, Paola Vermeer, a scientist studying head and neck cancer at Sanford… Continue Reading

Follow us on Twitter

Upcoming Events

Sep 14

RARE Patient Advocacy Summit

September 14 @ 8:00 am - 5:30 pm
Sep 14

RARE Partnering 2017

September 14 @ 8:00 am - 5:00 pm
Sep 15

RARE Patient Advocacy Summit

September 15 @ 8:00 am - 4:00 pm
Sep 15

RARE Champion of Hope Awards

September 15 @ 4:30 pm - 9:00 pm
Sep 16

Corporate Alliance

September 16 @ 9:00 am - 12:00 pm
Sep 16

RARE Day of Beauty

September 16 @ 12:30 pm - 4:00 pm
Sep 16

Tribute to Champions of Hope

September 16 @ 5:30 pm - 10:30 pm