September 8, 2015
Lowest of the Low! Thieves Tried to Steal Rare Patient’s Expensive Medical Equipment
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November 18, 2013
“A Story Six Years in the Making” Wall Street Journal Produces Masterful Piece&hell...
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March 12, 2012
USA Today Spotlights Rare Family Fighting For FDA Approval To Treat Dying Twins
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January 30, 2012
Rare Disease Bloggers Unite With Blog Hop to Raise Awareness for World Rare…
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