September 8, 2015
Lowest of the Low! Thieves Tried to Steal Rare Patient’s Expensive Medical Equipment
November 18, 2013
“A Story Six Years in the Making” Wall Street Journal Produces Masterful Piece&hell...
March 12, 2012
USA Today Spotlights Rare Family Fighting For FDA Approval To Treat Dying Twins
January 30, 2012
Rare Disease Bloggers Unite With Blog Hop to Raise Awareness for World Rare…