March 2, 2017
Rare Disease Research: The National Institutes of Health Supports Science that Saves Lives
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December 16, 2016
RARECast: An Entrepreneur Uses a Silicon Valley Approach to Tackle Rare Disease
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September 1, 2016
CBS Sunday Morning: Putting a Face on Rare Diseases
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January 26, 2016
NYT: Parents of Children With Rare Diseases Find Hope in For-Profit Companies
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September 10, 2015
Matt Might’s Powerful Response to “How to Minimize The Chance of Having a Disabled Child”
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August 28, 2015
RARECast: An Entrepreneur Uses a Silicon Valley Approach to Tackle Rare Disease
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March 4, 2015
OC Register: Aliso Viejo Nonprofit Shines on Rare Disease
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December 4, 2014
Rare is Not an Excuse: Curing NGLY1 Deficiency
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November 14, 2014
Catching Up: New Educational Videos, Rare Disease Report Releases Resource Book
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November 13, 2014
Cambridge Startup Hopes to Find Cure for US Boy’s Rare Disease
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August 7, 2014
US Congress Hears About NGLY1
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