March 29, 2017
18-Month-Old Marian Fighting For Hope Against Niemann-Pick Type C
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June 7, 2016
Room For More Participants: Vtesse Opens Niemann-Pick Type C1 Disease Study
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August 5, 2015
I’m Not Worried About The Niemann-Pick Type C Diagnosis, I Just Want to…
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February 11, 2015
The Boler Parseghian Center for Rare and Neglected Diseases Hosts Two Events for…
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January 7, 2015
WSJ Reports: Small Biotech Gets Rights to Rare Disease Drug
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July 23, 2014
Parents Share Hope, Concern Over the Future for Daughter with Niemann Pick Type…
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November 24, 2012
A Wonderful Four-Year Old Boy Lives for Now, Unaware of His Sad Future…
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October 16, 2012
Eliza Fights Niemann Pick Type C in Poland, A Fight Her Brother Lost…
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September 19, 2012
Kauffman Foundation To Screen “HERE. US. NOW.” Documentary at Harmony Gold Theater In&helli...
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August 12, 2012
Here. Us. Now. Film By Kauffman Foundation Details Daunting Realities of Rare Disease…
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April 24, 2012
Two-time Olympic Silver Medal Winner Adam Nelson: A Champion for Hope
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September 17, 2010
Why Vote4Hope? How Kickstarting Cures For Rare Disease Through The Pepsi Refresh Project&hellip...
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