Tag: NORD

A total of 36 posts are filed under NORD
The Compassionate Allowance List to be announced on Thursday, December 6, 2012.
Social Security Commissioner to Announce Expansion of Compassionate Allowances List
In their recent Advocacy Alert, the National Organization for Rare Disorders (NORD) encourages patient organization representatives to… Continue Reading
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FMD Chat Connects With RareConnect
Those affected by fibromuscular dysplasia around the world now have a new option through which to interact with one another as the result of… Continue Reading
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The Grassroots Movement Behind Ultra and Fast: Join the Movement!
A Guest Blog by Julia Jenkins: Director of Government Relations, EveryLife Foundation   The Grassroots Movement Behind ULTRA-FAST & How you… Continue Reading
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It’s a Wrap – World RARE Disease Day 2012 Success
The 5th Annual World Rare Disease Day took place February 29, 2012, with a fanfare of activities worldwide!  Sponsoring organizations like… Continue Reading
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February 29, 2012 – A Celebration of Unity
The Month of February During the month of February,  much of the American population will be celebrating historical events, special… Continue Reading
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RARE DISEASE DAY EVENTS 2012
Looking for a way to participate in Rare Disease Day Events? Don’t miss these Rare Disease Day events in DC!   Monday, February 27, 2012… Continue Reading
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Relapsing Polychondritis – My Chances of Winning The Lottery Are Better
I am a 43 year old woman with Relapsing Polychondritis. 1 in 3.5 Million people are diagnosed with this disease. My favorite saying is, “I… Continue Reading
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