A total of 37 posts are filed under NORD
Recognizing a Rare Disease Awareness Pioneer – Jack Klugman
It’s not often that we posthumously learn something new and meaningful about a Hollywood star, but such was the case for me this week with… Continue Reading
Social Security Commissioner to Announce Expansion of Compassionate Allowances List
In their recent Advocacy Alert, the National Organization for Rare Disorders (NORD) encourages patient organization representatives to… Continue Reading
FMD Chat Connects With RareConnect
Those affected by fibromuscular dysplasia around the world now have a new option through which to interact with one another as the result of… Continue Reading
The Grassroots Movement Behind Ultra and Fast: Join the Movement!
A Guest Blog by Julia Jenkins: Director of Government Relations, EveryLife Foundation   The Grassroots Movement Behind ULTRA-FAST & How you… Continue Reading
It’s a Wrap – World RARE Disease Day 2012 Success
The 5th Annual World Rare Disease Day took place February 29, 2012, with a fanfare of activities worldwide!  Sponsoring organizations like… Continue Reading
February 29, 2012 – A Celebration of Unity
The Month of February During the month of February,  much of the American population will be celebrating historical events, special… Continue Reading
Looking for a way to participate in Rare Disease Day Events? Don’t miss these Rare Disease Day events in DC!   Monday, February 27, 2012… Continue Reading