June 16, 2016
CMTC (Van Lohuizen Syndrome) US Annual Conference July 23rd, 2016 held in Columbus, Ohio
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April 23, 2014
Family of Young Girl with Sanfilippo Syndrome Raises $400,000 Towards a Cure
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March 29, 2014
Penelope Gets Her Wish! Girl with Adrenal Insufficiency Gets Trip to Disney
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