February 22, 2013
Mystery Rare Disease Drug Earns Isis $5M from GSK
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January 30, 2012
Blog Hop for Rare Disease Day – Please Read, Share and Raise Awareness!
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January 25, 2012
Charities Unite Worldwide to Fund Research into Reversibility of Brain Damage Caused By Sanfilippo Syndrome
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January 24, 2012
Sempra Energy and Kids Helping Kids Volunteers Supporting Global Genes Project
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January 12, 2012
Rare Stories of Hope and Inspiration – Submit Yours Today
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January 12, 2012
Improving Drugs and Biologics for Children – Washington DC Briefing
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December 30, 2011
Unlocking Lifesaving Treatments Act – ULTRA Act of 2012
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December 19, 2011
Costs of Caring for Children with Rare Disease: Online Survey
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December 15, 2011
75 Days Until World Rare Disease Day 2012!
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December 13, 2011
Brad Paisley Lends Voice to New Song “Hard Life” to benefit A-T Children’s Project
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December 11, 2011
Rare Disease Research at the Center for Applied Genomics at CHOP
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November 28, 2011
Get a Global Genes Car Sticker – Simply Submit Your Rare Patient Story of Hope and Inspiration
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