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Gene therapy promises to revolutionize medicine, particularly for rare diseases, approximately 80% of which are genetic in […]
Read moreRecapping Global Genes staff activities during Rare Disease Week
Mackenzie Abramson provides a recap of Rare Disease Day and Rare Disease Week activities in Washington D.C. […]
Read moreQuick and Simple Strategies to Help You and Your Family Reset and Recharge
As a rare disease caregiver or care partner, you may be feeling increasing pressure to do it […]
Read moreSigns of Depression and Anxiety in Children and Teens Living with a Rare Condition
Kids with rare diseases experience depression and anxiety at 2-3 times a higher rate than their peers. […]
Read moreFinding Support: A Compilation of Emotional and Mental Health Resources in the United States
There are a number of mental health resources available for rare disease patients, families and caregivers, but […]
Read moreGetting Help & Finding the Right Fit: Available Emotional and Mental Health Resources
Many resources are available for mental health care, but it is important to carefully research them, access […]
Read moreDepression and Anxiety: Understanding the Signs and Symptoms and Getting Help
Having a chronic and rare disease is a challenging experience, and especially difficult for children and adolescents, […]
Read moreAddressing and Managing Pain: Resources for Patients Who Have Pain
The management of chronic pain has proven to be a significant challenge for rare diseases patients and […]
Read moreCIRM Awards $56 Million to Advance Clinical Research, Including Lupus and Glioblastoma
CIRM Awards $56 Million to Advance Clinical Research, Including Lupus and Glioblastoma Rare Daily Staff The California […]
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