March 23, 2018
A Task for Tyler- Finding Treatments for SSADH and Hypotonia
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May 4, 2015
Winners of Global Gene’s First Annual RARE Patient Story Awards
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March 31, 2015
Introducing Our First Annual RARE Patient Story Award: VOTING NOW OPEN!
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November 3, 2014
Have You Shared Your Patient Story?
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July 14, 2014
Why We Post Patient Stories: And Why the World Needs to Hear Yours
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February 24, 2014
Ethan and Family Grapple with Glutaric Acidemia Type 1
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February 13, 2014
I am Ignacio and This is my Story of Life With Idiopathic Intracraneal Hypertention
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February 2, 2014
Hannah Hutchinson Fought Off Kaposiform Hemangioendothelioma with Kasabach-Merritt Syndrome
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January 24, 2014
How the Internet Helped Me Cope With My Rare Disease (idiopathic angioedema and chronic urticaria)
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January 18, 2014
Mila Fights 15q24 Microdeletion Syndrome
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January 15, 2014
Mother and Artist Help Raise Funds for Global Genes Through Etsy Shop
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January 8, 2014
Raising a Medically Fragile Child: Zoe with Congenital Central Hypoventilation Syndrome
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