March 23, 2018
A Task for Tyler- Finding Treatments for SSADH and Hypotonia
Read More
May 4, 2015
Winners of Global Gene’s First Annual RARE Patient Story Awards
Read More
March 31, 2015
Introducing Our First Annual RARE Patient Story Award: VOTING NOW OPEN!
Read More
November 3, 2014
Have You Shared Your Patient Story?
Read More
February 24, 2014
Ethan and Family Grapple with Glutaric Acidemia Type 1
Read More
February 2, 2014
Hannah Hutchinson Fought Off Kaposiform Hemangioendothelioma with Kasabach-Merritt Syndrome
Read More
January 15, 2014
Mother and Artist Help Raise Funds for Global Genes Through Etsy Shop
Read More
January 8, 2014
Raising a Medically Fragile Child: Zoe with Congenital Central Hypoventilation Syndrome
Read More
December 21, 2013
“Don’t Let Disease Be Your Grinch This Christmas,” Says Mother of Patient with Batten Disease
Read More
December 20, 2013
Mother of Child with Juvenile Myositis Connects with Other JM Families over Holiday Fundraiser
Read More
December 17, 2013
Rare Disease During the Holidays: How Much Can You Handle?
Read More
December 5, 2013
Creation of Hayden’s Heroes Inspired by 6-Year-Old Hemophagocytic Lymphohistiocytosis Patient
Read More
Load More
X