Tag: patient stories

A total of 124 posts are filed under patient stories
Newark Second-Graders Learn About Rare Diseases From One of Their Own
Mirah Henry stood in front of her fellow students and slowly explained how she learned she had a rare disease. She was a bit shy at first,… Continue Reading
“My Daughter, My Hero”: Young Child Overcomes Multiple Treatments for Myasthenia Gravis
It all started in August 2010 when at 10-months old, my daughter Allissondra, started having problems with her eyes. They were turning in to… Continue Reading
Evan, with Prader Willi Syndrome, Uses Taekwondo To Show His Fighting Spirit!
Written by Lisa Matesevac. Six years old, Evan, has Prader-Willi syndrome. Hypotonia, or the state of low muscele tone, being one of the… Continue Reading
Rare Stories of Hope and Inspiration – Submit Yours Today
Thank you to all those who have submitted stories of hope and inspiration!  We’ve received many heartfelt stories from parents and… Continue Reading
Get a Global Genes Car Sticker – Simply Submit Your Rare Patient Story of Hope and Inspiration
We are looking for Patient Stories of Hope and Inspiration – to be shared with the world every day. Nothing can portray the fight, the… Continue Reading

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