January 26, 2017
Penn Medicine Explores ResearchKit's Potential for Studying Rare Disease
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October 6, 2016
New App for Cystic Fibrosis Patients Helps to Manage Symptoms
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December 10, 2014
Novartis Releases Acromegaly Patient Guide on Building a Support Network
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March 25, 2014
Facial Metrics Team Wins MIT H@ckathon for Rare Disease
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January 19, 2014
New Novartis Resource: Guides to Navigating Capitol Hill
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January 15, 2014
New Novartis Resource: Policy Issue Briefs
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October 12, 2013
Patient Tools: Caresync Holds Webinar on Managing Medical Records
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September 26, 2013
Patient Tools: Rubber Ducks and Superheroes put a Kid-Friendly Spin on Chemotherapy
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September 11, 2013
Patient Tools: The Health, Rare Disease and Chronic Illness Sub-Reddits of Reddit
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September 3, 2013
Creating Caresync: A Mom on a Mission Bridges Gaps Between Rare Patients and Their Care Teams
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August 1, 2013
Rare Disease Network Connecting Patients with Experts Highlights Hospitals’ Knowledge Base
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July 31, 2013
Patient Tools: Facebook Support Groups
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