January 9, 2012
Costs of Caring for Children with Rare Disease – A Survey by Counsyl
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December 15, 2011
75 Days Until World Rare Disease Day 2012!
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June 2, 2011
Batten Disease Awareness Weekend Bringing Hope for Children with a Fatal Disease—and No Cure in Sight
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May 9, 2011
PhRMA Urges Congress to Reauthorize Legislation for Pediatric Drugs
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March 11, 2011
Genetic Diseases In Children (GDC) Conference – A Grand Slam!
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January 26, 2011
GLOBAL GENES PROJECT ANNOUNCES “WEAR THAT YOU CARE™” DENIM AWARENESS CAMPAIGN FOR RARE DISEASE DAY 2011
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October 18, 2010
Another Global Pharmaceutical Company Jumping In To Help Rare Disease Community!
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September 29, 2010
Families look to orphan drug development at University of Minnesota
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August 9, 2010
Senator Brownback Introduces the Creating Hope Act of 2010; Bill Would Change the Priority Review Voucher Program and Extend it to Applications for Rare Pediatric Diseases
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August 4, 2010
FDA approval of Geron’s Embryonic Stem Cell Trial Has Widespread Implications For Rare Disease
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June 29, 2010
Children's Rare Disease Network Partners With Medpedia.com To Create Rarespace
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