January 9, 2012
Costs of Caring for Children with Rare Disease – A Survey by Counsyl
December 15, 2011
75 Days Until World Rare Disease Day 2012!
June 2, 2011
Batten Disease Awareness Weekend Bringing Hope for Children with a Fatal Disease—and No&helli...
May 9, 2011
PhRMA Urges Congress to Reauthorize Legislation for Pediatric Drugs
March 11, 2011
Genetic Diseases In Children (GDC) Conference – A Grand Slam!
January 26, 2011
GLOBAL GENES PROJECT ANNOUNCES “WEAR THAT YOU CARE™” DENIM AWARENESS CAMPAIGN FOR RARE&he...
October 18, 2010
Another Global Pharmaceutical Company Jumping In To Help Rare Disease Community!
September 29, 2010
Families look to orphan drug development at University of Minnesota
August 9, 2010
Senator Brownback Introduces the Creating Hope Act of 2010; Bill Would Change the…
August 4, 2010
FDA approval of Geron’s Embryonic Stem Cell Trial Has Widespread Implications For Rare&hellip...
July 23, 2010
Wanting What Others Have…
June 29, 2010
Children's Rare Disease Network Partners With Medpedia.com To Create Rarespace