Tag: PNH

A total of 3 posts are filed under PNH
Tunnel Vision, Headaches Lead to Rare Diagnosis of Paroxysmal Nocturnal Hemoglobinuria
by Skyler Hrabe I will never forget the feeling of utter helplessness, despair and disbelief as the realization dawned on me that my… Continue Reading
Balancing Act Premieres New Segment on Paroxysmal Nocturnal Hemoglobinuria Tomorrow Morning
(PNH) Paroxysmal Nocturnal Hemoglobinuria is a deadly life-threatening disease with devastating consequences.  35% of patients die within… Continue Reading
CHI Reports – How Biotech Companies are Shaping the Future in Rare Diseases
Biotech companies are navigating new trends in addressing rare diseases, conditions effecting 200,000 or fewer Americans. Jeremy Springhorn… Continue Reading