June 6, 2017
Amicus Therapeutics Receives Rare Pediatric Disease Designation for SD-101 for Patients with Epidermolysis Bullosa
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November 22, 2016
In Son’s Memory, Mom Pushes For Awareness for Pompe
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March 12, 2016
Pompe Diagnosis Brings Relief After One Woman’s Long Search
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August 10, 2015
Australian Government Offers Live-Saving Treatment for Pompe Patients
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April 13, 2015
Pompe Awareness Special on Access Health to Air on 4/15, 4/22
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March 28, 2015
Connexion Healthcare Co-Sponsors Pennsylvania’s Celebration of Rare Disease Day 2015
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February 4, 2015
A Surprise Diagnosis Leads Patient to Run Marathon for Pompe Disease
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December 18, 2014
R450,000 Raised by South African Team Pedalling 4 Pompe
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June 1, 2014
The Balancing Act®’s Behind The Mystery on Lifetime Talks Pompe Disease This Tuesday 6/3
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April 14, 2014
Support Group Meeting Challenges for Rare Diseases
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April 11, 2014
“What Are Biomarkers?” a Webinar by the AMDA and Genzyme on April 15th
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March 23, 2014
Twin Matteo Born with Pompe Disease
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