Tag: RARE Blog

A total of 62 posts are filed under RARE Blog
National Nurses Week – Thank those that work to help our kids!
Every year from May 6th – 12th the American Nurses Association celebrates National Nurses Week, and the 2011 theme is “Nurses Trusted to… Continue Reading
MOVING GENE THERAPY INTO HIGH GEAR – Innovations from Children's Hospital Boston
Gene therapy, still experimental but beginning to enter the clinic, attempts to utilize advanced molecular methods to treat and even reverse… Continue Reading
Donate or Sign up to recieve your 7,000 Bracelets for Hope™
7,000 Bracelets for Hope Continues throughout 2012 The 7,000 Bracelets of Hope campaign has already inspired hundreds of bracelet designers… Continue Reading
San Francisco Giants to host Rare Disease Fundraiser for MPS IV – with YouTube sensation Keenan Cahill!
No Question, Brian Wilson and Cody Ross are truly dynamite!!! Check out this article and video and pass it on!… Continue Reading
BIO National Convention – Call out to Patient Groups – END OF DAY TODAY!!
The BIO International Convention has a tremendous tradition of connecting the Life Sciences Community of Stakeholders.  Each year, BIO… Continue Reading
DNA Day – “Wear That You Care”
About National DNA Day National DNA Day commemorates the successful completion of the Human Genome Project in 2003 and the discovery of… Continue Reading
RARE Artist Art Contest Winners Announced
This year’s contest produced another amazing collection of beautiful artistic expression. We received many incredible and moving works of… Continue Reading