February 3, 2012
Gaucher Type 3 — Difficulty In Finding A Diagnosis For Rare Disease
November 14, 2010
Emily's Hope Against Vascular Ehlers-Danlos Syndrome: A Lesson For Us All
June 29, 2010
R.A.R.E. Project's, Jonathan Jacoby to present at FDA Hearing on Rare Disease
May 11, 2010
Letting Go . . . A Little Bit
February 1, 2010
Make Rare Disease a Top USA Health Care Priority, Vote Today at Change.org – 25 Million+, It is time to care about rare disease.
November 14, 2009
Rare Disease Research Conference at NIH in Jan. 2010, registration is close to full, act fast.
July 13, 2009
Searching for a Cure For Duchenne – Patient Perspective Podcast #1
July 6, 2009
My Journey into Rare Disease and the world of "No"