May 12, 2022
At a Crossroad for Innovation in Rare Disease
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May 5, 2022
Getting Your Community Ready for Clinical Trials
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May 5, 2022
What Does it Take to Become a Research-Ready Organization?
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May 2, 2022
Make a Plan: How to Talk to Your Family
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May 2, 2022
How a Genetic Counselor Can Help You
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April 26, 2022
Christina Hartman: Rare Mom, Advocate, Professional
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April 25, 2022
Caroline Loewy: Rare Mom, Advocate, Non-Profit Extraordinaire
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April 24, 2022
John Crowley: Rare Dad, Advocate, Researcher, Entrepreneur
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April 24, 2022
Irie Long: Rare Partner & Advocate
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April 23, 2022
Effie Parks: Rare Mom, Podcaster for Once Upon a Gene
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April 22, 2022
Daniel DeFabio: Rare Dad, Filmmaker, Advocate
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