April 26, 2022
Christina Hartman: Rare Mom, Advocate, Professional
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April 24, 2022
Irie Long: Rare Partner & Advocate
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April 22, 2022
Daniel DeFabio: Rare Dad, Filmmaker, Advocate
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April 8, 2022
Genetic Testing: Questions to ask when you get a diagnosis
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April 5, 2022
Foundation Alliance Upgrades to Global Advocacy Alliance
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February 4, 2022
Genetic Testing: When You Don’t Get a Diagnosis
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February 3, 2022
Questions to Ask Your Genetic Counselor for Rare Disease
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February 2, 2022
How a Genetic Counselor Can Help You — Told by a Rare Patient
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January 25, 2022
Finding Answers Through Genetic Testing – A Personal Journey
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