Tag: Rare Metabolic Disorder

A total of 3 posts are filed under Rare Metabolic Disorder
Newborn Screening Saves Life of Patient with Rare Metabolic Disease called Homocystinuria
Kristin was diagnosed with a rare metabolic disorder called Homocystinuria (HCU) following the start of mandatory newborn screening in the… Continue Reading
Control is an Illusion: PKU
Thankful for Life Guest Blogger: Kevin Alexander, MA This morning on my way to work I was almost in a very bad car accident. I was driving… Continue Reading
Twitter: Coming Together for Rare Disease
As a mom with a child with rare disease, I can relate to the needs of other parents and caregivers about raising awareness for their… Continue Reading

Follow us on Twitter

Upcoming Events

Sep 14

RARE Patient Advocacy Summit

September 14 @ 8:00 am - 5:30 pm
Sep 14

RARE Partnering 2017

September 14 @ 8:00 am - 5:00 pm
Sep 15

RARE Patient Advocacy Summit

September 15 @ 8:00 am - 4:30 pm
Sep 15

RARE Champion of Hope Awards

September 15 @ 5:00 pm - 9:30 pm
Sep 16

Corporate Alliance

September 16 @ 9:00 am - 12:00 pm
Sep 16

RARE Day of Beauty

September 16 @ 12:00 pm - 5:00 pm
Sep 16

Tribute to Champions of Hope

September 16 @ 5:30 pm - 10:30 pm