December 10, 2012
Behind the Mystery of Rare and Genetic Diseases: Lifetime Television
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November 2, 2012
RARE MeetUps™: A Place to Share Ideas, Learn, and Connect with Others Experiencing Rare Disease
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July 10, 2012
Global Genes | RARE Project Host Patient Advocacy Summit at the Balboa Bay Club on September 28, 2012
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July 10, 2012
Global Genes | RARE Project Host Patient Advocacy Summit at the Balboa Bay Club on September 28, 2012
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March 13, 2012
MarbleRoad: A Storybook Success
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March 1, 2012
NIH Supports Global Genes Project and Jeans/Genes Awareness Efforts
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February 25, 2012
Growing up with Hunter Syndrome – by Christopher Dutcher
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February 24, 2012
A Family’s Fight Against Carbamoyl Phosphate Synthetase Disease
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February 13, 2012
Fighting ABCA3 Surfactant Deficiency Since Day One – Meet Brayden
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February 8, 2012
Spooner Family Searches For Diagnosis For Daughters Rare Disease
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February 2, 2012
Kylie McPeak’s Story – Living Life with an Undiagnosed Rare Disease
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