July 16, 2015
Five Rare Disease Toolkits Every Patient and Parent Should Read
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July 14, 2015
Writers Room at USA’s Royal Pains Works with Global Genes to Get the Facts on Rare Disease
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July 3, 2015
Mini Toolkits Based on Popular 2015 RARE Webinars Launch
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December 5, 2014
New RARE Toolkit: Pediatric Palliative Care
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October 23, 2014
New RARE Toolkit “Searching For Answers: Contacting Biopharmaceutical Companies Effectively”
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September 5, 2014
Patient Advocacy Summit 2014: Transition and Transformation – Rare Disease in Adolescence and Adulthood
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July 23, 2014
Now Online: Taking Control: Gaining Independence as a Young Adult with a Rare Disease
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June 27, 2014
New RARE Toolkit Release: Access to Unapproved Medicine
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April 27, 2014
Undiagnosed Children’s Day: SWAN USA & Global Genes Celebrates with Video and Toolkit
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April 16, 2014
New Educational Toolkits from Global Genes Demystify Rare Community’s Biggest Problems
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April 16, 2014
New Educational Toolkits from Global Genes Demystify Rare Community’s Biggest Problems
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