July 10, 2015
Celebrate Your Victory – the 21st Century Cures Act Passes the House!
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October 25, 2012
RARE: An Award Winning Documentary of a Mother’s Extraordinary Journey to Save Her&hellip...
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August 8, 2012
1st World PVNH Disorder Awareness Day Launched Successfully and Proclamation Signed
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April 24, 2012
Two-time Olympic Silver Medal Winner Adam Nelson: A Champion for Hope
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April 12, 2012
Adenomyosis: Rare at a Young Age
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April 5, 2012
2q37 Deletion Syndrome: Searching for Answers
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April 5, 2012
A Fifth Season…Brightening the Landscape of Batten Disease
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October 17, 2011
The CLASS Act and Caregiver Village
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August 19, 2011
EVERYLIFE Foundation Blog – FDA Commissioner Appoints New Leadership
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