Tag: Reed Zeighami

A total of 2 posts are filed under Reed Zeighami
Battling Sanfilippo Syndrome Type A – Reed’s Story
In January of 2011, we learned that our then three and a half year old son Reed has Sanfilippo Syndrome Type A, a rare and fatal… Continue Reading
In A Parents Words – Why RARE Disease Needs ULTRA and FAST Act!
Roy and Reed Zeighami, couldn’t have articulated it better – why the RARE Disease community needs the ULTRA Act/Fast Act of 2012. Please… Continue Reading