Tag: Regina Holliday

A total of 4 posts are filed under Regina Holliday
The Flammable Heart Exhibition
The Charles August Long Undiagnosed Diseases Act of 2011; the battle to save community health center funding and keep Medicaid intact; The… Continue Reading
Rare Disease Day 2011: Research, Action and Impact
Updates from MarbleRoad for Rare Disease Day 2011, including events, publications, and a quick shout-out for those fighting rare kidney… Continue Reading
Increased Patient Participation in the Fight Against Rare Disease – IOM Report
The Institute of Medicine (IOM) issued a new report: “Rare Diseases and Orphan Products: Accelerating Research and Development” which… Continue Reading
Patients 2.0 – Health 2.0 – Rare Disease Patients invited!
Join Health 2.0 as they work to plan the next phase of action for patients, citizens and anyone passionate about improving healthcare,… Continue Reading