January 6, 2017
World's Largest-Ever Study of SYNGAP1 (MRD5) Launches
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June 25, 2016
Recap: cureCADASIL Registry Rally and Get-Together in Colorado
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August 17, 2015
New Registry Launches For Patients With FOP
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December 12, 2014
National CdLS Registry Launches
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June 20, 2011
RemedyMD To Give Away a Free Rare Disease Research Registry Valued up to…
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January 19, 2010
Parent Report from the Advancing Rare Disease Research: The Intersection of Patient Registries,...
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