Tag: San Filippo syndrome

A total of 3 posts are filed under San Filippo syndrome
Little Boy with Sanfilippo Syndrome to “Light Up the Night” in Texas
Five-year-old Will Byers is tall for his age. He loves fire trucks and grilled cheese sandwiches and playing with his little sister. He… Continue Reading
Abeona Therapeutics Raises Foundation-led $3.6M to Develop Therapies for Children Suffering from Rare Sanfilippo Diseases
Could new treatments be in the pipeline for patients with Sanfilippo syndrome?  Investors U.S.-based Cure Sanfilippo Foundation,… Continue Reading
Charities Unite Worldwide to Fund Research into Reversibility of Brain Damage Caused By Sanfilippo Syndrome
Charities Unite Worldwide to Fund Research into Reversibility of Brain Damage Caused By Sanfilippo Syndrome (RARE Project – Dana Point,… Continue Reading