December 8, 2014
The Journey of Super Ryder with Multiple Rare Diseases
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February 11, 2013
MassBio, The Shwachman-Diamond Syndrome Foundation, Celebrates Rare Disease Day in Boston
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December 6, 2012
Shwachman-Diamond Syndrome Foundation
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November 29, 2012
Diagnosed with Two Rare Diseases, ABS and SDS, Khale Sees a Major Decline in His Health
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August 30, 2012
Faircraft Records/Universal Republic Recording artist Chris Mann and Singer/Songwriter Katrina Parker to Perform at Global Genes | R.A.R.E Project’s Tribute to Champions of Hope™ Benefit
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August 30, 2012
Faircraft Records/Universal Republic Recording artist Chris Mann and Singer/Songwriter Katrina Parker to Perform at Global Genes | R.A.R.E Project’s Tribute to Champions of Hope™ Benefit
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