Tag: soliris

A total of 6 posts are filed under soliris
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When It Wasn’t Crohns or TTP: How Much More Rare Could It Be?
Six months after my husband Ben and I were married, I was diagnosed with Crohn’s Disease. Way to test out that whole “in sickness and in… Continue Reading
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Well, It Wasn’t Typical and It Wasn’t The Flu: Atypical Hemolytic Uremic Syndrome
Erin Adams from Fenton, Michigan underwent many tests in the ER before a rare diagnosis of atypical Hemolytic Uremic Syndrome. But could a… Continue Reading
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Our Warrior, Ethan, Fighting Atypical HUS
In January 2013 at the age of 8, Ethan came home from school one morning after throwing up. Just a short 48 hours later we were in the ER of… Continue Reading
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Forbes Reporters: How A $440,000 Drug Is Turning Alexion Into Biotech’s New Innovation Powerhouse
The pharmaceutical business is not kind to entrepreneurs. It takes more than a decade and hundreds of millions of dollars in venture capital… Continue Reading
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Christian Billingsley – Atypical Hemolytic Uremic Syndrome (aHUS)
On February 7, 2012,  WWL-TV, the CBS affiliate in New Orleans, reported on Christian Billingsley, a 17-year old boy diagnosed with… Continue Reading
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CHI Reports – How Biotech Companies are Shaping the Future in Rare Diseases
Biotech companies are navigating new trends in addressing rare diseases, conditions effecting 200,000 or fewer Americans. Jeremy Springhorn… Continue Reading