Tag: soliris

A total of 7 posts are filed under soliris
Tunnel Vision, Headaches Lead to Rare Diagnosis of Paroxysmal Nocturnal Hemoglobinuria
by Skyler Hrabe I will never forget the feeling of utter helplessness, despair and disbelief as the realization dawned on me that my… Continue Reading
When It Wasn’t Crohns or TTP: How Much More Rare Could It Be?
Six months after my husband Ben and I were married, I was diagnosed with Crohn’s Disease. Way to test out that whole “in sickness and in… Continue Reading
Well, It Wasn’t Typical and It Wasn’t The Flu: Atypical Hemolytic Uremic Syndrome
Erin Adams from Fenton, Michigan underwent many tests in the ER before a rare diagnosis of atypical Hemolytic Uremic Syndrome. But could a… Continue Reading
Our Warrior, Ethan, Fighting Atypical HUS
In January 2013 at the age of 8, Ethan came home from school one morning after throwing up. Just a short 48 hours later we were in the ER of… Continue Reading
Forbes Reporters: How A $440,000 Drug Is Turning Alexion Into Biotech’s New Innovation Powerhouse
The pharmaceutical business is not kind to entrepreneurs. It takes more than a decade and hundreds of millions of dollars in venture capital… Continue Reading
Christian Billingsley – Atypical Hemolytic Uremic Syndrome (aHUS)
On February 7, 2012,  WWL-TV, the CBS affiliate in New Orleans, reported on Christian Billingsley, a 17-year old boy diagnosed with… Continue Reading
CHI Reports – How Biotech Companies are Shaping the Future in Rare Diseases
Biotech companies are navigating new trends in addressing rare diseases, conditions effecting 200,000 or fewer Americans. Jeremy Springhorn… Continue Reading