July 21, 2011
The Best Gift of All — A Hug. Join The Hug Your Kid Challenge Today!
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July 17, 2011
PEACE, LOVE, ROCK, AND HOPE4BRIDGET! Rock’in it for Rare Disease in Chicago!!
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May 14, 2011
Brothers and Sisters Need Support Too – ForeverSibs!
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May 9, 2011
National Nurses Week – Thank those that work to help our kids!
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January 2, 2011
Judgement – Do Not Defend Yourself When It Comes To Your Child’s Rare Disease
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December 17, 2010
Perspectives From an Exhausted Mom
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June 22, 2010
Rare Disease Family in the Limelight! The TODAY Show – Tuesday June 22
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February 23, 2010
Parent Essay: It All Happens in the Grocery Store.
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