Tag: stopcaidnow

A total of 10 posts are filed under stopcaidnow
Stop CAID (Childhood Auto-Inflammatory Disease) Now Announces “Bringing Home the CURE for the Holidays”
top CAID Now (www.stopcaidnow.org) announces a call to action “Bringing home the CURE for the holidays”. The campaign kick off begins… Continue Reading
RARE Parenting: Autoimmune Vs. Autoinflammatory and Why I Started StopCAIDNow
I was desperate to find a diagnosis for my sons. It took over 18 months for my youngest to be diagnosed and it took years for my oldest to… Continue Reading
Rare Parenting | Lisa Moreno Dickinson
If its currently a controversy in the world of rare disease–I’ve written about it. For the past few years I’ve been tackling the hard… Continue Reading
A Message for Organization Leaders: When Non-Profits Start Competing
When it comes to curing children of rare diseases, there is no room for competition. With passionate leaders taking the reigns, with so few… Continue Reading
Choosing the Right Treatment Option Can Leave Parents Feeling Like They’re “Playing God”
Any parent who has ever had a child in the hospital can relate. We’ve all been faced with the dilemma of which treatment we should support… Continue Reading
What Do You Do When your Child is Suffering from a Rare Disease?
One shoe does not fit all: listen to patients and family because the sound of hoof beats may be those of zebras, the rare diseases. Have you… Continue Reading
When Doctors Don’t Know How to Help – A Parent Perspective
When Doctors Don’t Know How to Help From misdiagnosis to no diagnosis … what can a parent do? First Posted on Parent Society By… Continue Reading

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