November 13, 2016
New Zealand’s Rare Disease Organization Putting Words into Action
Read More
April 29, 2016
When “Undiagnosed” is Your Diagnosis: The Szanjuk’s Journey
Read More
April 22, 2016
RARECast: Living with a Disease in Search of a Name
Read More
April 13, 2016
Five Applicants In Need Will Get A Whole Genome Sequencing Test Courtesy of SWAN and ORKO’s GeneDx
Read More
February 5, 2014
Global Genes Partners With SWAN USA To Help Undiagnosed Rare Disease Patients Seek A Medical Diagnosis Through Free Whole Exome Sequencing Program
Read More
February 5, 2014
Global Genes Partners With SWAN USA To Help Undiagnosed Rare Disease Patients Seek A Medical Diagnosis Through Free Whole Exome Sequencing Program
Read More
December 31, 2013
Family Rallies for Girl Suffering from Undiagnosed Brain Disorder
Read More
December 19, 2013
Creating Hope for Undiagnosed Patients (SirenSong)
Read More
July 19, 2013
Syndromes WIthout A Name Present Maxi’s Story at the Genetic Services Network Victoria Seminar
Read More
November 4, 2012
Syndromes Without A Name – USA
Read More
August 8, 2012
A Family With Obvious Genetically Linked Neurological Issues Continues To Go Undiagnosed For Decades
Read More
September 1, 2011
Legislation Introduced to Create Undiagnosed Diseases Research and Collaboration Network
Read More
X