February 6, 2014
Search for the Cure: Use BiddingForGood.com on 3/02/14
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March 1, 2013
Reflecting on World Rare Disease Day, Families and Advocacy Groups Drive Treatments
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October 17, 2011
New York Times Opinion – Notes from a Dragon Mom!
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April 21, 2010
Outsider’s Perspective: NTSAD 2010 Family Conference
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March 4, 2009
Cherry Red Spot – Telltale Sign of Neurometabolic Disorders
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