June 1, 2017
Run to The Light: A Sibling’s Life-Long Mission to Defeat Batten Disease
Read More
December 4, 2015
RareCast: North Carolina Seeks Leadership Role in Combating Rare Diseases
Read More
October 14, 2015
North Carolina Woman to Run Athens Half Marathon in 50-State Quest to Save…
Read More
August 27, 2015
“Rare Disease is Bipartisan”
Read More
November 26, 2014
Thunder Road 2014: Running Blindfolded for Batten
Read More
June 25, 2014
Catching Up With 3 Rare Disease Families
Read More
March 18, 2014
“A Victory for One is a Victory for Everyone” Taylor’s Tale Creates Moving&he...
Read More
March 10, 2014
Rare Disease Day 2014 Candlelight Vigil with Taylor’s Tale
Read More
January 29, 2014
At the Corner of Tragedy and Opportunity
Read More
December 11, 2013
Some Place I Can’t Describe: Blindfolded Run for Taylor with Batten Disease
Read More
May 31, 2013
When the Eruption is Over: One Sister Dreams of When Rare Diseases (Like…
Read More
January 28, 2013
Knowing Firsthand the Struggles Associated with Infantile Batten Disease, Laura asks, “Wh...
Read More