July 10, 2012
Historic Legislation Signed by President Obama To Help Patients with Rare Diseases
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May 10, 2012
HR 5651, the Food and Drug Administration Reform Act of 2012
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March 23, 2012
Legislative Advocates Conference Call: PDUFA Update
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March 19, 2012
Rare Disease Language included in House draft PDUFA Bill
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March 13, 2012
The Grassroots Movement Behind Ultra and Fast: Join the Movement!
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March 5, 2012
FAST Act – Speeding Rare Disease Therapies, Educating Capitol Hill
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February 29, 2012
Rare Disease Day: Together, We Can Do More
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February 7, 2012
RDLA Rare Disease Lobby Day – Advocates Welcome To Attend Capital Hill Meetings
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December 30, 2011
Unlocking Lifesaving Treatments Act – ULTRA Act of 2012
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November 22, 2011
ULTRA Orphan Act – Fast Track Treatments for Ultra Rare Diseases
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