March 17, 2017
RARECast: A Quest for Tribe: Searching for Others with the Same Ultra-Rare Mutation
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December 26, 2016
Rare Revolution: My ULTRA-RARE Story
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January 3, 2014
Jasey’s Journey: Ultra-Rare PACS1 Genetic Disease
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December 7, 2013
Natali’s Journey with Pfeiffer Syndrome and Jackson-Weiss Syndrome
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December 5, 2013
Creation of Hayden’s Heroes Inspired by 6-Year-Old Hemophagocytic Lymphohistiocytosis Patient
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December 4, 2013
Alaskan Boy is Considered to be the Only Patient in State with Menkes
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November 26, 2013
An Otherwise Typical Teen, With a Diagnosis of Dubowitz Syndrome, She’s 1 in 50 million
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November 24, 2012
A Wonderful Four-Year Old Boy Lives for Now, Unaware of His Sad Future with Niemann Pick Type C
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September 29, 2011
RARE Meetups™ – Connect Locally
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