Tag: Undiagnosed

A total of 45 posts are filed under Undiagnosed
Emi Undiagnosed: Can You Help?
Emi was born on 7/17/13 with her intestines in her umbilical cord. We were told it was omphalocele, I was a patient at a high risk clinic… Continue Reading
When “Undiagnosed” is Your Diagnosis: The Szanjuk’s Journey
In honor of Undiagnosed Disease Day, we wanted to bring you the story of the Szanjuk’s family. Below, the story is written by mother and… Continue Reading
RARECast: Living with a Disease in Search of a Name
For many families with a child who has a rare disease, realizing that something is wrong can be the beginning of an often long and difficult… Continue Reading
46 Doctors and Counting: Why Can’t Anyone Figure Out My Disease?
By Chelsea Freund I first became sick in July 2010 at age 36 while living in Phoenix, Arizona. I was suddenly struck by intense vertigo and… Continue Reading
Undiagnosed Patients Support Group in San Diego 11/7
WHEN: Saturday 7 November 2015, 2-5PM WHERE: Ronald McDonald House 2929 Children’s Way San Diego, CA 92123 This event is to encourage… Continue Reading
Undiagnosed Disorder as a Result of Intestinal Parasite
Story by Katie Seternus I lived with an intestinal parasite in my body for two and half years that basically destroyed the function of my… Continue Reading
She Knew Something Was Wrong from the Beginning: Newborn With Genetic Liver Disease
From the beginning, Christina Whitehead knew something was wrong. Her newborn son, Nathan, who arrived March 2, was born with jaundice.… Continue Reading
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