A total of 5 posts are filed under VEDS
Twiggy: Saving a Life for Vascular Ehlers Danlos
On most days, Vascular Ehlers Danlos takes a back seat in my life, thanks to a magical creature continually by my side.   Twiggy.  Twiggy,… Continue Reading
Emily’s Hope Against Vascular Ehlers-Danlos Syndrome: A Lesson For Us All
The WHOLE WIDE WORLD should know there is a girl in central Florida with a beautiful smile, and an even more beautiful soul whose name is… Continue Reading
Emergencies: Are You Prepared?
Depending on the specific rare disease your family faces, having the right kind of emergency care can mean the difference in life or… Continue Reading
Letting Go . . . A Little Bit
Standing shoulder to shoulder with hundreds of other parents this past Monday on what turned out to be an absolutely sticky afternoon, I… Continue Reading
Desperate Measures
This is one of the posts from my blog, “Coming Unglued“, about life with Ehlers-Danlos Syndrome which is a rare connective tissue… Continue Reading