November 17, 2016
WSJ: The Doctors Who Solve Medical Mysteries
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September 16, 2015
WSJ Reports: For a Rare Disease, Drug Trials Scramble for Patients
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December 28, 2014
WSJ Reports: When Parents Start Companies to Cure Their Children
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November 18, 2014
How Lobbying for Rare Disease Research Influences Congress and NIH
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November 18, 2013
“A Story Six Years in the Making” Wall Street Journal Produces Masterful Piece on the Hempel Family Saga
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June 26, 2012
Wall Street Journal Goes In Depth On Tay-Sachs – Rare Disease Does Not Only Afflict Jewish, But Irish Community
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March 8, 2012
Change is Needed at the FDA Says Andrew Von Eschenbach
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December 27, 2011
Do It Yourself Drug Development, With Some Help! – Wall Street Journal Reports
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October 5, 2010
Do We Need a War on Rare Diseases?
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October 4, 2010
Increased Patient Participation in the Fight Against Rare Disease – IOM Report
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