Toolkit: Bringing Rare Disease to Capitol Hill

Capitol Hill may seem like an enigma to some. Shrouded in mystery, its activities may seem elusive and arcane. How does it function? How can it benefit you? Many are not aware what an incredible resource Capitol Hill can be for the rare disease community.

Laws and bills go before Congress and the Senate every day that can directly impact the rare disease community—as a result of advocates like you! From diffusing just how a bill becomes a law to understanding the intricacies of Congress, this toolkit will help integrate you into the public’s role in government.

Background Information
Reaching Members of Congress
Specific Ways to Advocate

Resource Guide