RARE Toolkits

Below is a list of all of our current RARE Toolkits.



Content Based on the June 2015 RARE Webinar:


Special Thanks to Our Contributors:

• Mohamad Mikati, Chief of the Division of Pediatric Neurology at Duke University
• Stephanie Okey, Head of North America, Rare Diseases, and Senior Vice President and General Manager of the US Rare Diseases Business of Genzyme
• Kelly Ranallo, Founder and President of Turner Syndrome Global Alliance
• Kari Luther Rosbeck, President & CEO of the Tuberous Sclerosis Alliance


gg thank you